During the most intense part of her treatment,
Amelia was visiting Sheffield Children's Hospital four times a week.
It means
Amelia has to attend the RVI three times a week for treatment, including a high dose of steroids and a special type of light therapy called extracorporeal photophoreses (ECP).
The Foreign and Commonwealth Office released a statement on behalf of
Amelia's family, and they said: "We are deeply shocked and saddened by the sudden passing of our much loved daughter and sister
Amelia, who will be truly missed by all who knew her.
Amelia, who had been in Australia for eight months at the time of her death, was a student at Loughborough College from 2012 to 2013, where she studied for A-levels in psychology and sociology.
Her parents Chris and Sharon said: "We are deeply shocked and saddened by the sudden passing of our much loved daughter and sister
Amelia, who will be truly missed by all who knew her.
And now her proud parents have taken to social media to show off a recently-installed hoist which helps
Amelia into her bed each night.
Amelia suffers from rare and debilitating Jacobsen syndrome, which has left her unable to walk, talk or move independently.
In hospitals,
Amelia can have significant and immediate impact relieving those who should be caring for patients from routine interactions, by helping manage operational and administrative processes such as booking rooms and beds or coordinating patient transfers.
Beginning this fall, IPsoft's
Amelia, the most comprehensive and human artificial intelligence platform available on the market today, will enable Nordnet to scale customer interactions as Nordnet's new digital employee.
Amelia also learned where the secret hot spots are.
Those were early days, early enough that
Amelia still wondered if it might not be true, if her mother might be wandering the halls of the hospital, looking for a way out, a way back home to them.
Newport Crown Court heard that the defendant called his daughter first, rather than dial 999, after
Amelia stopped breathing.
